Tips for the Caregiver
1) Maintain Your Health This is the number 1 recommendation of experts on caregiving. To serve your loved one well and to avoid resentment and burnout, take time to get adequate rest, to eat well, and to exercise.
2) Accept Help When people offer to help, accept the offer and suggest specific things that they can do. If your finances allow, consider paying for help in such areas as meals, housecleaning and transportation.
3) Take Time for Yourself Get a respite from caregiving by spending time away from the person who is ill, for example by pursuing a hobby. Give yourself an opportunity for leisure and enjoyment, a way to recharge your batteries. 4) Educate Yourself Seek information about CFS or FM, especially strategies for reducing symptoms and improving quality of life. One source is the articles on this website. 5) Stay Connected Avoid isolation and reduce stress by maintaining relationships with extended family and friends. This may mean getting together regularly for exercise or cards with friends, spending time with children or any other kind of socializing that keeps you connected with others. 6) Consider Counseling Be sensitive to signs of stress and consider seeing a counselor if you detect them. Signs that counseling might be appropriate include feeling exhausted, depressed or burned out, or over-reacting, such as by angry outbursts.
7) Grieve Your Losses Just as people with CFS and FM experience many losses, so do family and friends. They are deprived of part of the companionship the patient used to provide, as well as her work around the house and, in many cases, financial contributions.
8) Create New Shared Activities Serious illness may make it impossible for you to spend time with the person who is ill in the same way as before, but you can develop new shared activities to do together.
9) Seek Support from Other Caregivers Fellow caregivers can offer strength, support, inspiration and models of successful adaptation. You might meet such people through patient support groups. Also, we offer a self-help course for family and friends of people with CFS and FM. In Conclusion
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