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What To Do If You Want to Get Better

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By Bruce Campbell

If you have ME/CFS or fibromyalgia and would like to get better, what should you do? Based on our having known thousands of people with the two conditions since 1998, here are five suggestions to consider.


1 Get Medical Help


A doctor can rule out other explanations for your symptoms, prescribe medications for symptoms such as pain and poor sleep, and treat other medical issues that often accompany ME/CFS and FM. The latter include sleep disorders, orthostatic issues, depression, chemical sensitivity, and food and digestive issues (IBS, yeast infections, celiac disease, lactose intolerance).
 
For more on what a physician can do for you, see the article How Your Doctor Can Help If You Have CFS/ME, written by CFS authority Dr. Charles Lapp.
 
2 Focus on Pacing

If there is one key to improvement, it is living within the limits imposed by ME/CFS and FM using pacing. With pacing, you can escape from repeated cycles of push and crash, live a more stable and predictable life that makes improvement possible.
 
Pacing takes time to master, but the rewards can start immediately. One strategy that many people in our program have tried first and found helpful is taking daily planned rests, as described in the article Reducing Symptoms with Planned Rest. For a detailed description of pacing, see the Pacing Tutorial.
 
3 Manage Stress

ME/CFS and FM increase stress and make people more sensitive to stress. This combination makes managing stress crucial. You can begin by working to reduce stress, for example, by having a daily relaxation time, limiting exposure to the media and perhaps to some people, getting help with chores and letting go of unrealistic expectations. Stress avoidance is also very useful.
 
For specific strategies for both stress reduction and stress avoidance, see the articles in the Stress Management section of this site and the four-part series Managing Stress.

4 Get Support from Other People with CFS/FM

Knowing others with CFS and/or FM can counteract isolation and depression, and provide information, understanding, inspiration and support. Surround yourself with positive people who are working actively to improve.
 
To learn about our community, see the Courses section. For accounts of improvement, see our Success Stories.

5 Use Patience and Determination

Improvement is possible but almost always gradual, so we recommend using an attitude that combines patience and determination. We call it acceptance with a fighting spirit, which means accepting that life has changed for now, and also believing that there are things to do that will bring improvement.
 
For seven places to start, see the article The 1% Solution.
  
…Some Final Words
 
Let me end with some words from ME/CFS and FM authority Dr. Charles Lapp, posted on a self-help website for people with ME/CFS and fibromyalgia that we created together:
 
Your doctor can help you cope with CFS/FM, but your success in regaining control will likely depend more on what you do than on anything a doctor does for you.
 
If you adopt [our approach] --which will require discipline, courage and lots of patience-- you can overcome the CFS/FM dragon. You can regain control, instead of your condition controlling you!

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